Posted (jooosh) in All Posts on June-14-2009

Today we all went out as a family and ran some errands. We’re in the market for patio furniture so most of the time was spent hunting around for things we would like. When we arrived at a location, Tina or I would take turns going in to take a look around while the other stayed in the car with the Bun. We brought her along inside one time though, doing our best to minimize any undue exposure.

At this moment I’m very relieved about the fact that Ella has not passed out since we increased her diuretic. I’m happy about this for two reasons: First, she’s not passing out. Secondly, if the passing out trend were to continue, we would have to pursue other invasive procedures to determine the cause.

We are so thankful for the progress Ella has made, and she has made incredible progress, but it is still difficult. We’re reminded every time we see another “healthy” child running around, often times even younger than Ella. Then, we catch ourselves and His truth comes to mind. Tonight, I had a traditional doxology placed on my heart. This is the final verse of a hymn written in 1674 by Thomas Ken:

Praise God, from Whom all blessings flow;
Praise Him, all creatures here below;
Praise Him above, ye heavenly host;
Praise Father, Son, and Holy Ghost.

We continue to trust in our Lord and Savior, knowing that He has a perfect plan for her life. We’re so blessed that He chose us to be her parents.

Joel Snyder on June 15th, 2009 at 12:42 am #

Ella, You are looking good girl and out runnin around shopping. I am glad to hear that your meds seem to be doing the trick so far. Tina and Josh hope the weekend worked out well. Have a great week. Love,Grandpa!!!!!!!

Joan and Steve Odell on June 15th, 2009 at 9:23 am #

Miss Ella, looks like Mommy and Daddy are training you right – shop, shop, shop, laughs!!! You look so good and glad the meds are working. Mom and Dad you are the best – Prayers and hugs – Steve and Joan

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